How to support a loved one with MG
Understanding Myasthenia Gravis (MG) When someone close to you has MG, it’s important to know how to support them. MG can bring changes and challenges, but your understanding and care can make a positive difference.
Steps to Provide Support:
Learn About MG:
Dive into resources like the MGFA website (https://myasthenia.org/) to get a solid grasp on the condition.
Open Communication:
Discuss how MG affects them daily. Adjust your support based on their needs.
Self-Care:
Ensuring you're in a good place mentally and physically will enable you to assist them better. Consider joining a caregiver support group.
Crafting a Mutual Support Plan
Let your loved one know you are available to help them when they need it. MG can be unpredictable, and knowing you're there can relieve stress.
Regularly check in, seeing if there are specific areas where they might need assistance.
Use open-ended phrases like:
"How can I assist you today?"
"Would you like help with that task?"
"You seem a bit worn out; can I take over for a bit?"
Regularly reassess to ensure the plan aligns with their evolving needs.
Balancing Tasks and Time Together
Remember, it’s not always easy for them to ask for help. Anticipate their needs when you can.
Divide tasks based on ability. They might handle lighter tasks while you take on the more demanding ones.
Cherish moments together. Whether it's a quiet evening or an outdoor adventure, making memories is vital.
Active listening is key:
Let them share their feelings without interruption.
Confirm you've understood their sentiments.
Collaboratively find solutions rather than imposing one.
Prioritizing Wellness Both of you need to recharge, emotionally and physically. Ensure regular rest, engage in enjoyable activities, and remember that both of you are on this journey together.
Understanding Your Role
When you're helping someone with MG, it's crucial to also think of yourself. Just like MG is unique for every patient, every caregiver's journey is also distinct.
Ways to Help Yourself:
Specific Requests:
Instead of a general "Can you help?", be clear about what you need: "Could you grab some eggs and bread from the store for me? Thanks!"
Accept Assistance:
If someone offers help, take it. It's okay to admit when you're overwhelmed.
Reliable Support:
Know who genuinely wants to help and who might let you down. Focus on the reliable supporters.
Have a Plan B:
On tough days when you can't provide support, know other resources or people to turn to. Check local MG support groups for additional assistance.
Stay Connected & Informed
Educate yourself about MG and keep updated on new findings.
Connect with local communities, support groups, or friends who understand the journey.
Remember, while you're providing support, your feelings and well-being matter too. Always prioritize self-care.
You can read more information here
For more resource on how you can help visit the Caregivers Resource section on this page
For more information about support groups in your area read more here
Read more about self-care for the caregiver here
Disclaimer
Content has been taken from MGFA, adapted and clinically reviewed for accuracy.