Letting people know about your MG is your decision alone but talking about it can help people better understand your condition and support you. What do you share? Only you will be able to determine the level of information and support that feels appropriate for you. But below are some tips that might help!
Talking at Work
It's your choice if you want to tell your employers about MG.
Letting them know can prevent misunderstandings.
Stress or too much work can make MG worse.
Sometimes, you might need short breaks.
If coworkers notice symptoms, like droopy eyelids, explain briefly: “I have MG. It affects my muscles. If you want to know more, I can share resources."
Telling Friends
Keep it simple: "My muscles and nerves sometimes don't talk to each other."
If you look or act tired, it's because of MG.
MG is not contagious. No one knows exactly why people get it.
MG stays with you, but treatments can help. A kind question is, "How have you been feeling lately?"
Share ways friends can help.
Explaining to Kids
Kids will have questions. Be open and honest.
For older kids, get into some details. For younger ones, be basic.
Say: "I have a sickness that makes me feel weak. Some days I'm good, some days I'm tired. I always love you."
Answer their questions honestly.
Kids can help in many ways, like joining you in MG activities.
You can read more information here
Disclaimer
Content has been taken from MGFA, adapted and clinically reviewed for accuracy.