Immediate Measures:
Ensure first responders can easily spot your house address, especially in the dark.
Consider a flashing or distinctively coloured front light.
Some medical alert systems offer door lock boxes for emergency entry.
Call an ambulance if the situation is severe.
If you own a BiPAP machine, take it to the hospital.
MG Emergency Kit:
Maintain an updated emergency information packet.
Include:
All physicians' contact details.
Details about any implanted devices (e.g., IV port, pacemaker).
Emergency contact list.
Specific MG information for healthcare providers.
List of cautionary drugs for MG patients.
Your medical history and previous hospital records.
A comprehensive list of medications and supplements.
Health insurance cards.
Medical power of attorney forms and advance directive papers (if applicable).
Navigating the Emergency Department:
The emergency department should liaise with your regular MG neurologist.
The hospital's in-house neurologist might be consulted for guidance.
Have a family member or friend for support and information provision.
Remember, MG is rare. Many healthcare providers might have limited experience with it or might not have encountered it at all. Your regular neurologist remains an invaluable asset in guiding your emergency care. Always prioritize safety and swift communication in emergencies
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Disclaimer
Content has been taken from MGFA, adapted and clinically reviewed for accuracy.