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Being prepared for an MG crisis

Spotting an MG Crisis:

Identifying an MG crisis early can be challenging, especially when symptoms overlap with other conditions like heart issues, lung diseases, or even anxiety. However, here are some tell-tale signs specific to an MG crisis:

  1. Struggling to breathe when lying flat.

  2. Breathing rapidly and shallowly, exceeding 25 breaths per minute.

  3. Needing to take a breath mid-sentence.

  4. A weak cough, particularly when having trouble clearing mucus or saliva.

  5. Increased difficulty with speech, chewing, or swallowing.

  6. Struggling to keep your head up due to neck weakness.

  7. Severe arm or leg weakness accompanied by breathlessness.

  8. Notable muscle strain around the neck, ribs, and abdomen during breathing.

  9. Unable to count aloud past 20 after taking a full breath.

If you experience shortness of breath, especially with the signs mentioned above, seek medical attention immediately.

Be Crisis-Ready:

Preparation is vital. Equip yourself with essential resources and knowledge beforehand:

  1. Essentials Kit: Keep a ready-to-go bag with necessities, including:

    • Personal toiletries (toothbrush, toothpaste, deodorant).

    • Comfortable clothing, neck pillow.

    • Headphones, phone charger.

    • Your treatment medicine and a comprehensive list of all medications you're on.

  2. Cautionary Drugs: Some medicines might exacerbate MG symptoms. Always inform healthcare professionals about your MG condition and consult before taking any new medication, even over-the-counter ones.

  3. Emergency Alert Card: This wallet-sized card, indicating you have MG, can be shown to medical staff. It's invaluable for ensuring you get the right care in emergencies. Medication List: Maintain a detailed record of all medicines, including dosage, frequency, and where you get them.

  4. Emergency Contacts: Keep a list of crucial contacts - caregivers, medical professionals, and personal emergency contacts. Ensure it's comprehensive, covering everyone who might be essential during a crisis.

You can store most of this information in the Personal Documents section under the Profile of the Huma app.

By being proactive and informed, you'll be better equipped to handle an MG crisis, ensuring the best possible outcome for your health and well-being.

You can read more information here

Disclaimer

Content has been taken from MGFA, adapted and clinically reviewed for accuracy.

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